Living With MS:
When It's Just
"One of Those Days"
with Multiple Sclerosis
Living with MS:
how do you
just “Live with Multiple Sclerosis”?
don’t know about you, but I have been having some days, more recently,
have really been struggling with having more problems with the bad days
of the symptoms of ms -- where I feel so horrible that it has been much
difficult for me to be even be able to get out of bed (it took me 90
after I first woke up just for me to be able to get out of bed the
other day). It hasn't been this bad for a while, but
sometimes the really bad days just come and go whenever.
do you do, when it’s just “One of those days with Multiple
do you do on the bad days for you to just to be able to function some?
know what I mean…when you are battling with the
you are having “one of those days” -- where it seems like your body is
against you instead of working with you, how does this make you feel
do you do about it?
effects of Multiple
Sclerosis can be mild to severe. Whether you have a mild, medium or
severe case of Multiple Sclerosis, it can still be difficult dealing
with the symptoms of MS because it can reduce how well you can function
for me, I first all allow myself to at least become a little
Getting out of bed can be a challenge for me on the tougher or really
more I feel overwhelmingly exhausted and the sicker I feel, the less my
and in particular my legs, want to function at all.
the really bad days, I can’t get out of
until the nerves in my knees, hips and legs decide to work, because my
become like wet noodles and they will not support the weight of my
body. If I try to
get out of bed and the nerves in my legs are not working like they
working, I’ll end up on the floor. Dragging myself off of the
floor is such a tremendous effort for me, that it just adds to how much
I already feel the ms fatigue and exhaustion, but I haven't had this
type of situation occur for quite a while, at this point.
Sclerosis fatigue can
also add to the problem of not functioning if the fatigue becomes so
overwhelming that it makes it difficult to be able to do much of
anything on the more extreme days (or possibly even a few weeks). After
finally am able to get out of bed without hurting myself, I do a few
me to feel more functional and so that I also connect better with my
I have found that usually helps is to make sure that I drink water
first wake up, since this helps my body to cool down some.
find that sometimes I may be partially dehydrated from being overheated
when I first wake up or from not
drinking enough water the day before, but there is also the problems
that I tend to have problems from the effect of Multiple
my nerves function much less. Heat tends to make my nerves
short-circuit and function much less.
find that if I take extra vitamin C during the day, this helps keep
nerves from over reacting to heat as much by helping to
Sclerosis immunity, if I
feel sick, since I may be getting an
infection of some kind and I don’t know it.
healthy food also helps with reducing the symptoms of
Sometimes when I am not feeling well, I don’t feel like eating, but
eating is not a good idea at this point. Eating helps to give the body
nutrients that can help to refuel the body and give the body more
energy and stamina to reduce MS
I do eat something, I also take vitamin D, in larger quantities,
since I tend to be low in vitamin D. Vitamin D is
produced in the skin, as a reaction to sunlight shining on our skin
during the day. When our vitamin D levels become too low,
also makes our immune system weaker, making it more difficult for our
bodies to fight off infections. I find that when I take Vitamin D
are reduced much more. I typically take 6,000 to 7,000 iu of vitamin D
daily. Vitamin D
is amazing what it can help to do for our bodies. Taking vitamin D
boost the immune system and helps to reduce problems with depression,
also add to the large amount of fatigue, which is already a
problem for most of us with Multiple Sclerosis.
more often can help reduce MS symptoms. Reducing how stressed
I find that after eating food and taking vitamins that this
me to function
better some. Playing music can help also to put me in a
make my day seem much easier to take. Things don’t seem so difficult to
after I play music because it can help put me in a more positive state
and help reduce my stress levels.
with MS, when
it's just "one of those days", I find that rather than making
myself miserable about the fact that I'm having a much worse day
because of the effects of Multiple Sclerosis on my body, that I am
better off doing what
I can do for reducing my symptoms of MS and allowing myself to rest and
recover. This is sometimes the best thing that I can do, to
allow my body to recover faster.
After all, beating myself up about the fact that I am "so
again" just makes everything so much worse for me. After all
what we focus our mind on usually makes a big difference in helping our
bodies to recover whenever we have a relapse, at least to some degree.
Give yourself a break on the tougher days and do what you can
instead of focusing on what you can't do for today. If we are
kinder to our bodies and work with them, this will help our bodies to
rest, replenish and recover sooner and help to reduce the possibility
of a ms relapse or ms exacerbation from occurring.
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ways to help reduce your symptoms of
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